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Register for Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone — anywhere — can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

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Strides for CJD 2025 Deadlines

Sponsorship and Team Fundraising Deadline: Sunday, August 10th at 11:59pm ET:

  • SPONSORSHIP DEADLINE: Premier, Diamond and Platinum Sponsors who donate by this date will have their name (individual) or logo (company) displayed on participant t-shirts. Gold Sponsors will have their name (not their logo) listed on participant T-shirts. Sponsors who donate after this date will have their name or logo displayed on the Strides for CJD website only.

  • TEAM FUNDRAISING DEADLINE: Teams who raise $1,000 by this deadline will have their loved one’s name listed on participant t-shirts.

T-SHIRT DEADLINE — Wednesday, August 20th at 11:59pm ET: Register by this time to be guaranteed a free Strides for CJD t-shirt with your registration.

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Learn More About Prion Disease

Get Help Now

View Upcoming Events

Learn More About Prion Disease

Clinical Trial Updates

12-27-2024 Ionis Pharmaceuticals Community Statement
Information on ION717 Clinical Trial
8-15-2024 Ionis Pharmaceuticals Community Statement
4-5-2024 Ionis Pharmaceuticals Community Statement
4-5-2024 Ionis Pharmaceuticals Community Statement
Creutzfeldt-Jakob Disease (CJD) is a rare, fatal brain disorder within a group of illnesses called prion diseases.
In the United States there are nearly 500 new CJD cases per year.
The incidence of CJD cases worldwide is one to two cases, per million individuals, per year.

How we’re making a difference.

  • We provide a HelpLine - 7-days a week - to connect families with resources they need
  • We offer referrals, support groups, and webinars
  • We help educate families, caregivers, medical professionals, and funeral professionals
  • We hold an Annual Family Conference that brings together affected families and prion disease experts
  • We collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
  • We offer a Research Grant Program with international awardees selected by our Scientific Advisory Committee
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The 2026 CJD Foundation Family Conference will be held in July in Chicago, IL.
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© 2025 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.