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Register for Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone — anywhere — can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

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Strides for CJD Website

Strides for CJD 2025 Deadlines

FUNDRAISING COMPETITION — Thursday, September 4th at 11:59pm ET: Learn more about the fundraising competition and prizes for the top two fundraising teams nationally here.

EARLY BIRD REGISTRATION DEADLINE — Thursday, September 11th at 11:59pm ET: Register by this time to be guaranteed a free Strides for CJD t-shirt with your registration.

EARLY BIRD REGISTRATION DEADLINE — Thursday, September 11th at 11:59pm ET: Register by this time to be guaranteed a free Strides for CJD t-shirt with your registration.

Thursday, October 2nd at 12:00pm ET: Deadline to register online for events on Saturday, October 4th and Sunday, October 5th.

Thursday, October 9th at 12:00pm ET: Deadline to register online for events on Saturday, October 11th and Sunday, October 12th.

Programs for Families
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About Prion Disease

Clinical Trial Updates​

Information on Clinical Trials
12-27-2024 Ionis Pharmaceuticals Community Statement
Information on Drug Development
Creutzfeldt-Jakob Disease (CJD) is a rare, fatal brain disorder within a group of illnesses called prion diseases.
In the United States there are nearly 500 new CJD cases per year.
The incidence of CJD cases worldwide is one to two cases, per million individuals, per year.

How we’re making a difference.

  • We provide a HelpLine - 7-days a week - to connect families with resources they need
  • We offer referrals, support groups, and webinars
  • We help educate families, caregivers, medical professionals, and funeral professionals
  • We hold an Annual Family Conference that brings together affected families and prion disease experts
  • We collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
  • We offer a Research Grant Program with international awardees selected by our Scientific Advisory Committee
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The 2026 CJD Foundation Family Conference will be held in July in Chicago, IL.
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© 2025 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.