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Letter to Clinicians from
Dr. Pierluigi Gambetti, Director,
National Prion Disease Pathology Surveillance Center
HelpLine 1.800.659.1991
Welcome to the Creutzfeldt-Jakob Disease Foundation Website. This site contains information compiled with the needs of CJD patients and their families in mind. The CJD Foundation consists of members who want to support you through this experience. Support is a key ingredient in coping with CJD and our primary goal is to be an important part of your support system. Support from those who have had similar experiences can be more helpful than any written information.
The CJD Foundation (CJDF) Inc, is a registered 501 (c)(3) non profit organization
Volunteers Needed!
If you live in the New York City area and are willing to volunteer a few hours a week, starting now, we would greatly appreciate your help putting together our Hospice binders and condolence packets. We are located in mid-town at 341 W. 38th Street. Our “formal” office hours are 9-5:00 but we are usually here earlier and stay later.
Please call or email me and let me know if you are able to help. We would be extremely grateful for a few helping hands right now.
Thank you very much!!
Florence
212-719-5900
Florence@cjdfoundation.org
Our New Address:
341 W. 38th Street, Suite 501
New York, NY 10018
212-719-5900
1-800-659-1991
CJD 2013 and the 11th Annual CJD Foundation Family Conference
Tentative Schedule
Registration Form
Tri Fold
Washington Court Hotel
Washington, DC
July 12 -15, 2013
The 12th Annual Aaron Kranitz Memorial Golf Tournament
Tuesday, August 13, 2013
Firestone Country Club
North Course
Akron, Ohio
“I Know” is published in memory
of Stephanie Martine Papoulis,
who died tragically in 2007
at the age of 45 from CJD.
The song is performed by the
Young People's Chorus of NYC read more.
Click here to download a demo
of the song "I Know"
Letter to Clinicians from
Dr. Pierluigi Gambetti, Director,
National Prion Disease Pathology Surveillance Center
The following link will take you to our Patient Questionnaire which you can print and send to us.
As the Horsemeat Hysteria Spreads, E.U. Opens a Mad-Cow Can of Worms
Wall Street Journal Article "Mad-Cow Disease" May Hold Clues To Other Neurological Disorders