2016 CJDF Family Conference
7/8/16 - 7/10/16
Capitol Hill visits - Monday, July 11, 2016
2016 Invitation Letter
2016 Registration Form
2016 Sponsorship/Information Tri-Fold
2016 Conference Agenda
Upcoming Teleconference Support Groups
Tuesday, May 10 at 7pm (EST) - Combination sporadic/familial
Guest Speaker - Dr. Katrina Hallmark
Topic - Bereavement and CJD
Tuesday, June 7 at 7pm (EST) - Sporadic Teleconference
Tuesday, June 14 at 7pm (EST) - Familial Teleconference
Call or email Melany to register and get the dial-in number
email@example.com or 1-800-659-1991
Registration is Required
Past Teleconference with Dr. Michael Geschwind – Click here for audio of that call.
Past Teleconference with Dr. Paul Brown - Click here for audio of that call.
Past Teleconference with Eric Minikel - Click here for audio of that call.
Past Teleconference with Dr. Corinne Lasmézas- Click here for audio of that call.
Past Teleconference will Jill Goldman, Genetic Counselor - Click here for audio of that call.
2016 Strides for CJD is scheduled for October 1, 2016
Stay tuned for details!
Upcoming Family Fundraisers:
* Norma Grant - Dinner Fundraiser in Memory of her husband Dennis, May 7, Coconut Creek, Florida
* The 7th Annual Nancy Schepis Mallon Golf Outing, in Memory of Nancy Schepis Mallon,
May 21, Hookstown, Pennsylvania
* Jill Butterman Canuel - Jill is participating in the Tough Mudder in memory of her brother
Garry, June 11, Sparta, Kentucky
* Mike Vitanza - 8th Annual Fundraising Concert in Memory of his brother Robert, June 11,
* Rhonda Fansler - 4th Annual Hunt for a Cure, in Memory of her husband Jon, August 6,
* Kathy Esposito - 4th Annual Espo’s Night of Hope, in Memory of her husband Bobby, August 20,
* The Snively Family - The Marsha K. Snively Golf Outing, in Memory of Marsha K. Snively, September 18,
Please email or call firstname.lastname@example.org to find out more about these fundraisers
Prion 2015 Abstracts
Click here to find out how to GET INVOLVED with the CJD Foundation
Website Under Construction!