- About Us
- About CJD
- GINA Act
- Family Support
- CJD Foundation Family Research Grants
- Educational DVD
- News Articles
- Blood Donor Study
- End of Life Issues
- CJD Foundation Family Conference
- Letter From The American Red Cross
- Memory Quilt
Welcome to the Creutzfeldt-Jakob Disease Foundation Website. This site contains information compiled with the needs of CJD patients and their families in mind. The CJD Foundation consists of members who want to support you through this experience. Support is a key ingredient in coping with CJD and our primary goal is to be an important part of your support system. Support from those who have had similar experiences can be more helpful than any written information.
The CJD Foundation (CJDF) Inc, is a registered 501 (c)(3) non profit organization
341 W. 38th Street, Suite 501
New York, NY 10018
Please Save the Date for
"Voices of Hope"
A Fundraiser benefiting the CJD Foundation
October 5, 2014, 4 p.m. – 7 p.m.
New York University’s Kimmel Center
60 Washington Square South
Join us in New York City for a concert and reception benefit for
The CJD Foundation
Featuring a special performance by the Young People’s Chorus of New York City, singing songs of tribute and hope, including
“I Know,” the haunting and inspirational music written and composed by
Jim Papoulis and Mike Greenly and presented as a gift to the CJD Foundation
Silent auction * Family Tributes * Informal Reception * Concert
Or participate online in the silent auction, tributes, and other activities.
Watch for details on this exciting event!
Golf Outing in Memory of Marsha Snively - Saturday, August 9, 2014 - West Virginia
Golf Outing in Memory of Marsha Snively - Sunday, September 28, 2014 - Pennsylvania
Hunt for a Cure in Memory of Jon Fansler - Saturday, September 14, 2014 - Indiana
Espo's Night of Hope in Memory of Bobby Esposito - Saturday, November 8, 2014 - Pittsburgh
Information for Professionals
CJD FOUNDATION QUESTIONNAIRE
The following link will take you to our Patient Questionnaire which you can print and send to us.
“I Know” is published in memory of Stephanie Martine Papoulis, who died tragically in 2007 at the age of 45 from CJD. The song is performed by the Young People's Chorus of NYC -- an extraordinary group of multicultural young singers whose lives are positively transformed by being a part of it ... even as they earn awards for artistry around the world."