2016 CJDF Family Conference
7/8/16 - 7/10/16
Capitol Hill visits - Monday, July 11, 2016
2016 Invitation Letter
2016 Registration Form
2016 Sponsorship/Information Tri-Fold
2016 Conference Agenda
Upcoming Teleconference Support Groups
To be scheduled
Past Teleconference with Katrina Hallmark, PhD - Click here for audio of that call.
Past Teleconference with Dr. Michael Geschwind – Click here for audio of that call.
Past Teleconference with Dr. Paul Brown - Click here for audio of that call.
Past Teleconference with Eric Minikel - Click here for audio of that call.
Past Teleconference with Dr. Corinne Lasmézas- Click here for audio of that call.
Past Teleconference will Jill Goldman, Genetic Counselor - Click here for audio of that call.
2016 Strides for CJD is scheduled for October 1, 2016
Stay tuned for details!
Upcoming Family Fundraisers:
* Rhonda Fansler - 4th Annual Hunt for a Cure, in Memory of her husband Jon, August 6,
* Kathy Esposito - 4th Annual Espo’s Night of Hope, in Memory of her husband Bobby, August 20,
* The Snively Family - The Marsha K. Snively Golf Outing, in Memory of Marsha K. Snively, September 18,
Please email or call firstname.lastname@example.org to find out more about these fundraisers
Prion 2015 Abstracts
Click here to find out how to GET INVOLVED with the CJD Foundation
Please note our new mailing address, effective July 1, 2016:
The CJD Foundation
P.O. Box 5312
Akron, OH 44334
As the CJD Foundation supports families across the country, our focus is on programs and events that are virtual or held in various regions. To support this objective and best leverage our resources, our board has voted to sublet the NY office space for the remaining months of our lease, and re-consolidate our program/support team in Akron. Debbie Yobs will remain in the NY metro area, continuing our NY area presence, including support groups, medical education events, and our strong relationship with NYC Department of Health. The team will continue leveraging technology to interact between Akron and the Northeast. We’re sad to note that Melany Pritchard will be leaving us at the end of June. We thank her for her contributions and wish her all the best in her future endeavors!
Website Under Construction!