2016 Strides for CJD is scheduled for October 1 and 2, 2016
Learn more and find a location in your area at www.strides4cjd.com
Upcoming Family Workshops
California Family Workshop
Tuesday, September 13, 2016
Click here for more detail
Arizona Family Workshop
Thursday, October 27, 2016
Details coming soon!
Upcoming Teleconference Support Groups
Tuesday, September 20 - Combination Sporadic/Familial Teleconference
Please call or email to register and to receive the dial-in number
1-800-659-1991 or email@example.com
Past Teleconference with Katrina Hallmark, PhD - Click here for audio of that call.
Past Teleconference with Dr. Michael Geschwind – Click here for audio of that call.
Past Teleconference with Dr. Paul Brown - Click here for audio of that call.
Past Teleconference with Eric Minikel - Click here for audio of that call.
Past Teleconference with Dr. Corinne Lasmézas- Click here for audio of that call.
Past Teleconference will Jill Goldman, Genetic Counselor - Click here for audio of that call.
Upcoming Family Fundraisers:
*Linda Parrish - CJD Fundraiser in honor of her husband, Clay, September 17, Louisville, Kentucky
* The Snively Family - The Marsha K. Snively Golf Outing, in Memory of Marsha K. Snively, September 18,
*2nd Annual Piriz Family Prion Disease Fundraiser, October 15, Bellerose, Queens
Please email or call firstname.lastname@example.org to find out more about these fundraisers
Prion 2015 Abstracts
Click here to find out how to GET INVOLVED with the CJD Foundation
Please note our new mailing address, effective July 1, 2016:
The CJD Foundation
P.O. Box 5312
Akron, OH 44334
As the CJD Foundation supports families across the country, our focus is on programs and events that are virtual or held in various regions. To support this objective and best leverage our resources, our board has voted to sublet the NY office space for the remaining months of our lease, and re-consolidate our program/support team in Akron. Debbie Yobs will remain in the NY metro area, continuing our NY area presence, including support groups, medical education events, and our strong relationship with NYC Department of Health. The team will continue leveraging technology to interact between Akron and the Northeast.
Website Under Construction!