Toll-Free 1.800.659.1991
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ABOUT THE CJD FOUNDATION

CJD FOUNDATION NATIONAL HELPLINE - 800-659-1991

The Creutzfeldt-Jakob Disease, Inc. (CJD) Foundation, a nonprofit 501 (c)(3) has established a NATIONAL TOLL FREE HelpLine. 800-659-1991. The HelpLine is answered 9-5 EST Monday thru Friday.  At all other times, messages can be left and they will be returned promptly.

PATIENTS, FAMILY MEMBERS, MEDICAL & HEALTHCARE PROFESSIONALS, AND ANYONE INTERESTED IN CJD ARE ENCOURAGED TO PHONE OR EMAIL US WITH:

Questions about a suspected or confirmed CJD diagnosis
General questions concerning CJD
Questions concerning patient care
Questions concerning family support
Questions about research
Questions about surveillance
Questions and concerns about funeral arrangements and/or autopsy
Donations to The Foundation

The Foundation provides emotional support to individuals and families dealing with CJD and other prion diseases as well as practical information to caregivers through our website
www.cjdfoundation.org and the toll free national HelpLine.

THE CJD FOUNDATION

Provides support to families.
Provides information to concerned healthcare professionals, funeral directors, embalmers,
    the press and media.
Promotes research and the dissemination of research findings.
Advocates for good quality care for those afflicted with CJD.
Actively advocates for the development of a response through public policy.

Our contact information:
The CJD Foundation
P.O. Box 5312
Akron, Ohio 44334
         
help@cjdfoundation.org 
            
HelpLine:  1-800-659-1991  (ask for Florence or Marisa)
          
Fax: 330-668-2474
 
  © 2008 Creutzfeldt-Jakob Disease Foundation, Inc.