The Creutzfeldt-Jakob Disease, Inc. (CJD) Foundation, a nonprofit 501 (c)(3) has established a NATIONAL TOLL FREE HelpLine. 800-659-1991. The HelpLine is answered 9-5 EST Monday thru Friday. At all other times, messages can be left and they will be returned promptly.
PATIENTS, FAMILY MEMBERS, MEDICAL & HEALTHCARE PROFESSIONALS, AND ANYONE INTERESTED IN CJD ARE ENCOURAGED TO PHONE OR EMAIL US WITH:
Questions about a suspected or confirmed CJD diagnosis General questions concerning CJD Questions concerning patient care Questions concerning family support Questions about research Questions about surveillance Questions and concerns about funeral arrangements and/or autopsy Donations to The Foundation
The Foundation provides emotional support to individuals and families dealing with CJD and other prion diseases as well as practical information to caregivers through our website www.cjdfoundation.org and the toll free national HelpLine.
THE CJD FOUNDATION
Provides support to families. Provides information to concerned healthcare professionals, funeral directors, embalmers, the press and media. Promotes research and the dissemination of research findings. Advocates for good quality care for those afflicted with CJD. Actively advocates for the development of a response through public policy.
Questions about a suspected or confirmed CJD diagnosis