CJD Foundation Family Research Grants

The mission of the Creutzfeldt-Jakob Disease (CJD) Foundation is based on serving the needs of the patients and families we represent.  We all know that the only hope we have to find a treatment or a cure is through research.

In 2006, at the request of a few family members and with the approval of the CJD Foundation Board of Directors, we established the Family and CJD Foundation Human Prion Disease Research Grant project. Thus far we have offered a total of seven one year research grants.  Each is underwritten by both the CJD Foundation and one of our families and bears the name of the loved one being remembered.

The grant opportunities are advertised through the NeuroPrion Network of Excellence, the European prion research community, PrionNet Canada, the Canadian prion research community and the CJD Foundation. Our scientific advisory committee evaluates the applications and determines the most promising projects.

This program has evolved over the years as interest and participation has grown.  Each participating family agrees to contribute a total of $10,000, either in one payment or in $2,500 installments each year for 4 years.  In the past, the CJD Foundation has matched the $10,000 to offer a one year grant of $20,000, but in 2011 the Board voted to increase the total to $40,000 with families still responsible for only $10,000. 

We encourage you and your family to consider this meaningful and important opportunity to honor the memory of your loved one.

Please contact us if you are interested or need further information.