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Ramona on January 24, 2008 12:00 PM
WEST HILLS, CALIF
JUST WANTED TO ADD MY EMAIL , ITS LILMIS60@AOL.COM IN CASE ANYONE WANTS TO TALK
Ramona on January 24, 2008 11:54 AM
West Hills , Calif
My sister in law is laying in West Hills Hospital right now dying from CJD, she has been in hospital for over 2 months and has been in a vegatative / coma state for almost the whole two months , I am very angry at the whole world how did this happen ? why did this happen ? she was such a fun , loving , full of life person and to watch someone you love and care about so much brain just dissinagrate before your very eyes is far to heartbreaking to put into words, they are talking about bringing in hospice now , and asking my brother to stop her feeding tube , am i wrong for being so very angry , i think not and to all those families who have lost a loved one or is losing a loved one to CJD my entire heart goes out to you , or at least what ever is left of my heart , thanks for listening
Heartbroken In West Hills, Calif
catherine on January 20, 2008 06:26 PM
pickens,sc
My Dad died Janurary 18,2007 from cjd!This has been a hard year for my Mom and six brothers and sisters and twenty or so grandkids!My Dad was 80 years old and so full of life that people could not believe that he was that old!He started with dizzy spells and it just got so bad so fast!The first trip to the er was for so called inner-ear infection!That was December 3,2006. He lasted until Jan.18 and I stayed with him almost everyday and watched as this awful disease took my HERO!!His was considered sprociac cjd and I have never watched something so awful!!Please let me hear from some of you
Connie on January 19, 2008 11:21 PM
Albany, OR
The message I just posted did not give my email address to contact me - It is: mutzi1@comcast.net
I hope someone will respond who has lost their husband as I did. Also, I want to thank Tammy for her prayers and love which mean more than I can say - love you, Tammy!!
Connie on January 19, 2008 11:13 PM
Albany, OR
My husband died from familial CJD on December 20, 2007. I am devastated losing him at age 64 when we had just begun our retirement years together. If someone else has lost their husband and would like to be able to share the experience, feelings, grief, etc., please send me an email. Thank you!
Tracie Kedzierski on January 15, 2008 06:31 PM
Newport RI
I know this is a difficult site to visit especially if you have had a loss to CJD or have a loved one facing a suspected CJD diagnosis. Thank you for posting and for also offering support to others. I need to ask for your help. I am a staff volunteer with the Foundation and also share a loss to CJD, my dad in April 2000. I assist the Foundation in the collection of information on our CJD victims by administering a questionnaire to families. Our goal is to learn important information that may lead us to answers. We hope to be a valuable repository as research continues. Your input will greatly assist us in all our efforts. Please participate in our questionnaire and contact me at tracieked@gmail.com to do so. Sending thoughts and prayers, strength and hope, and many thanks in advance for your help. Tracie
Esther on January 14, 2008 11:21 PM
Plymouth, MN
Jordan, what part of Minnesota are you from? I lost my mom to cjd in July. Just curious as to where you live.
Leah on January 12, 2008 04:17 PM
Baldwin, MD
My father in law was diagnosed over a week ago. However, he had been having symptoms for over 9 months. This is so difficult on the family to see someone go downhill so fast. It is difficult to wrap your mind around this disease..
rebarcheks on January 12, 2008 12:34 PM
western kansas
we lost our brother to this 01-11-08 and are giving tissue sample to help to this may be the begining of the end of this
Jordan H. on January 11, 2008 04:01 PM
Minnesota
That is the exact story of my wonderful husband John!
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