Links

The following links may be helpful to you:

National Prion Disease Pathology Surveillance Center
Dr. Pierluigi Gambetti,
Director, Institute of Pathology Case Western Reserve University
2085 Adelbert Rd.
Cleveland, Ohio 44106
Phone: 216-368-0587
Online: www.cjdsurveillance.com
Email: cjdsurv@po.cwru.edu

Case Western Reserve University
Dr. Brian Appleby, Staff Neurologist, University Hospitals - Case Medical Center
University Foley Elderhealth Center
3619 Park East Drive, suite 211
Beachwood, OH 44122
216 464 6412
216 464 6403 (Fax)

UCSF Clinical Study
Dr. Michael Geschwind
Memory and Aging Center
350 Parnassus Ave.
Suite 706
San Francisco, CA 94143
Phone: 415-476-0670
Online: www.memory.ucsf.edu

Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, Atlanta, Georgia
Phone: 1.800.311.3456 or 404.639.3396
Online: www.cdc.gov

National Organization for Rare Diseases (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: 203.746.6518 or 1.800.NORD (6673)
Fax: 203.746.6481
Online: www.rarediseases.org

National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
31 Center Drive MSC 2540
Bethesda, MD 20892-2540
Phone: 301.496.5751 or 1.800.352.9424
Online: www.nih.gov

Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville, MD 20857
Phone: 301.443.1130
Online: www.fda.gov

United States Department of Agriculture Food Safety and Inspection Services (FSIS)
Phone: 202.720.9113
Infoline: 1.800.535.4555
Online: www.fsis.usda.gov
Information on food safety, meat and related products and meat inspection

United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS)
Phone: 609.259.5825
301.734.7799
Online: www.aphis.usda.gov
Information on animal health and BSE

Consumer Federation of America
1424 16th St., NW Suite 604
Washington, D.C. 20036
Phone: 202.387.6121
Online: www.consumerfed.org

CJD Voice (Chat Room)
Moderator, Dorothy Kraemer
Online: www.cjdvoice.org
Online discussion, support, and information site


CJD International Support Alliance              

CJD Support Group Network (Australia)
Contact: Suzanne Solvyns
Telephone number: + 61 298998905
Email: contactus@cjdsupport.org.au
Website: www.cjdsupport.org.au

The CJD Foundation, Mexico
Director, Dr Victor Sanchez
Sierra Mojado 800
Guadalajara, Jalisco 443430
Mexico
Online: www.fundacioncjd.com

CJD Support Network (UK)
Contact: Gillian Turner
Telephone number: +44 (0)1630 673973
Email: help@cjdsupport.net
Website: www.cjdsupport.net

CJD Insight, Information & Support
Organized for Familial CJD
Deana Simpson, RN, Founder & Director
www.cjdinsight.com

A.I.En.P. ONLUS (Italy)
Associazione Italiana Encefalopatie da Prioni ONLUS
Contact: Roberto Borgis
Telephone number: + 39 348 88 11 514
Email : info@aienp.it
Website: www.aienp.it

CJD Support Network (Japan)
Contact: Muneto Ueda
Telephone number: +81-573-62-4970
Email: cs-net@takenet.or.jp
Website: www.cjd-net.jp/EnglishPage.htm

CJD Foundation (Israel)
Contact: Alice Anane
Email:  info@cjd-israel.org

MCJ-HCC (Maladie de Creutzfeldt-Jakob par Hormone de Croissance Contaminée) (France)
Contact: JB Mathieu, President
Telephone number:  + 33 0820 825303
Email: mcj-apev@wanadoo.fr
Website: www.juste-grandir.fr   www.mcj-hcc.fr

The CJK Initiative, Germany
Jens Backer, President
Gottengen, Germany