Links

The following links may be helpful to you:

National Prion Disease Pathology Surveillance Center
Dr. Pierluigi Gambetti,
Director, Institute of Pathology Case Western Reserve University
2085 Adelbert Rd.
Cleveland, Ohio 44106
Phone: 216-368-0587
Online: www.cjdsurveillance.com
Email: cjdsurv@po.cwru.edu

Cleveland Clinic Lou Ruvo Center for Brain Health
Dr. Brian Appleby
9500 Euclid Ave/U10
Cleveland, OH 44195
(phone) 216-636-9467
(fax) 216-445-7013
http://my.clevelandclinic.org/neurological_institute/lou-ruvo-brain-health/default.aspx

UCSF Clinical Study,
Dr. Michael Geschwind
Memory and Aging Center
350 Parnassus Ave.
Suite 706
San Francisco, CA 94143
Phone: 415-476-0670
Online: www.memory.ucsf.edu

Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, Atlanta, Georgia
Phone: 1.800.311.3456 or 404.639.3396
Online: www.cdc.gov

National Organization for Rare Diseases (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: 203.746.6518 or 1.800.NORD (6673)
Fax: 203.746.6481
Online: www.rarediseases.org

National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
31 Center Drive MSC 2540
Bethesda, MD 20892-2540
Phone: 301.496.5751 or 1.800.352.9424
Online: www.nih.gov

Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville, MD 20857
Phone: 301.443.1130
Online: www.fda.gov

United States Department of Agriculture Food Safety and Inspection Services (FSIS)
Phone: 202.720.9113
Infoline: 1.800.535.4555
Online: www.fsis.usda.gov
Information on food safety, meat and related products and meat inspection

United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS)
Phone: 609.259.5825
301.734.7799
Online: www.aphis.usda.gov
Information on animal health and BSE

Consumer Federation of America
1424 16th St., NW Suite 604
Washington, D.C. 20036
Phone: 202.387.6121
Online: www.consumerfed.org

CJD Voice (Chat Room)
Moderator, Dorothy Kraemer
Online: www.cjdvoice.org
Online discussion, support, and information site

CJD International Support Alliance              

CJD Support Group Network (Australia)
Contact: Suzanne Solvyns
Telephone number: + 61 298998905
Email: contactus@cjdsupport.org.au
Website: www.cjdsupport.org.au

The CJD Foundation, Mexico
Director, Dr Victor Sanchez
Sierra Mojado 800
Guadalajara, Jalisco 443430
Mexico
Online: www.fundacioncjd.com

JD Support Network (UK)
Contact: Gillian Turner
Telephone number: +44 (0)1630 673973
Email: help@cjdsupport.net
Website: www.cjdsupport.net

CJD Insight, Information & Support
Organized for Familial CJD
Deana Simpson, RN, Founder & Director
Phone: 586.786.6260

A.I.En.P. ONLUS (Italy)
Associazione Italiana Encefalopatie da Prioni ONLUS
Contact: Roberto Borgis
Telephone number: + 39 348 88 11 514
Email : info@aienp.it
Website: www.aienp.it

CJD Support Network (Japan)
Contact: Muneto Ueda
Telephone number: +81-573-62-4970
Email: cs-net@takenet.or.jp
Website: www.cjd-net.jp/EnglishPage.htm

CJD Foundation (Israel)
Contact: Alice Anane
Email:  info@cjd-israel.org

MCJ-HCC (Maladie de Creutzfeldt-Jakob par Hormone de Croissance Contaminée) (France)
Contact: JB Mathieu, President
Telephone number:  + 33 0820 825303
Email: mcj-apev@wanadoo.fr
Website: www.juste-grandir.fr   www.mcj-hcc.fr

The CJK Initiative, Germany
Jens Backer, President
Gottengen, Germany