Who We Are and Why We Exist
The Creutzfeldt-Jakob Disease Foundation consists of members who are concerned about the complexity of issues surrounding this fatal brain disease. Our mission is to support families and loved ones touched by CJD.
We carry out this mission by means of:
Publication of
CJD Information
pamphlet,
September 2003
Political and
public policy
advocacy
A Family
Conference
Collaboration
with the
National Prion
Disease
Pathology
Surveillance
Center and the
Centers for
Disease Control
and Prevention
Monitoring and
communicating by
newsletter all
of the current
research and
Foundation
activities
Collaboration
with
international
support groups
involved in
similar work
including:
The CJD Support
Network, U.K.
The Human BSE
Foundation, U.K.
The CJD Support
Network, Japan
The Fatal
Familial
Incomnia
Foundation,
Italy
The Human Growth
Horomone
Foundation,
Australia
Collaboration
with Dr.
Pierluigi
Gambetti,
director of the
NPDPSC, the CDC
and Dr. Nick
Baird, director
of the Ohio
State Department
of Health, we
are developing a
template in the
state of Ohio to
increase
physician
awareness and
reporting of CJD.
When this has
been
successfully
implemented, we
will work with
the Health
Departments of
the other states
to duplicate
this program.
Our website
www.cjdfoundation.org.
Philosophy
The
Foundation's
philosophy is to
be proactive by
establishing
collaborations
and linkages,
communicating
with family
members,
researchers,
physicians and
political
representatives
and informing
the broader
community about
CJD.
Policy
Our policy is to
offer support,
information and
practical
advice. We do
not offer
opinions or
medical advice.
Privacy
Policy
All information
shared with the
CJD Foundation
is confidential
and not used or
shared without
your written
consent. For
more detailed
information
please view our
privacy policy.