March 2008 Newsletter by Marisa
December 21, 2007 01:59 PM
Conference Information
Our Sixth Annual CJD Foundation Family Conference will be held, once again, at The Washington Court Hotel on Capitol Hill. The conference will be held July 11-13, 2008, and on Monday, July 14 we will arrange meetings with individual representatives on Capitol Hill for those who would like to participate.
We have an impressive list of presenters this year. For the first time we are partnering with the National Prion Disease Pathology Surveillance Center and PrioNet Canada to offer the first North American CJD Conference!
Please save the date! Registration forms and details will be mailed out at the beginning of April. We hope to see you there!
In order to make our conference as affordable as possible we will not be raising our registration fee. We are offering an opportunity for families to sponsor a coffee break, or a meal. Sponsors will be acknowledged by signage and mentioned in the conference binders. For further details or if you would like to sign up as a sponsor please contact Marisa at marisa@cjdfoundation.org or 1-800-659-1991.
Friday, July 11, 2008
Wine Reception - $1,000
Saturday, July 12, 2008
Breakfast - $2,000
Coffee Break - $500
Lunch - $3,000
Dinner - $5,000
Sunday, July 13, 2008
Breakfast - $2,000
Coffee Break - $500
Lunch - $3,000
GoodSearch
Hopefully you received our email detailing a small and simple way you can help The CJD Foundation through a free service called GoodSearch.com. Instead of using other search engines, you can use GoodSearch.com and we will receive a penny for each search you complete. I know this does not sound like a lot, but it will add up if we work together and spread the word to our friends and family. You can use it as your primary search engine or add it to your toolbar so you will not forget to use it. We are using it on our computers at the office and it works just like the Google or Yahoo search engines.
Washington Report from Florence
On Thursday and Friday, March 6th and 7th, Dr Gambetti and I visited Capitol Hill. Our focus was on human surveillance and the even more critical role it has now that we know “downer cows” were proven to have entered the food supply. On Friday afternoon we met with Ed Schafer, USDA Secretary, and some of his Under Secretaries. I’ve attached my report. My sense is that these meetings, at this time, held more potential for change because of the spotlight placed on the meat packers. We were invited to return to Washington for a meeting with the Labor HHS subcommittee.
Click here for the newsletter archive.
December 21, 2007 01:59 PM
Conference Information
Our Sixth Annual CJD Foundation Family Conference will be held, once again, at The Washington Court Hotel on Capitol Hill. The conference will be held July 11-13, 2008, and on Monday, July 14 we will arrange meetings with individual representatives on Capitol Hill for those who would like to participate.
We have an impressive list of presenters this year. For the first time we are partnering with the National Prion Disease Pathology Surveillance Center and PrioNet Canada to offer the first North American CJD Conference!
Please save the date! Registration forms and details will be mailed out at the beginning of April. We hope to see you there!
In order to make our conference as affordable as possible we will not be raising our registration fee. We are offering an opportunity for families to sponsor a coffee break, or a meal. Sponsors will be acknowledged by signage and mentioned in the conference binders. For further details or if you would like to sign up as a sponsor please contact Marisa at marisa@cjdfoundation.org or 1-800-659-1991.
Friday, July 11, 2008
Wine Reception - $1,000
Saturday, July 12, 2008
Breakfast - $2,000
Coffee Break - $500
Lunch - $3,000
Dinner - $5,000
Sunday, July 13, 2008
Breakfast - $2,000
Coffee Break - $500
Lunch - $3,000
GoodSearch
Hopefully you received our email detailing a small and simple way you can help The CJD Foundation through a free service called GoodSearch.com. Instead of using other search engines, you can use GoodSearch.com and we will receive a penny for each search you complete. I know this does not sound like a lot, but it will add up if we work together and spread the word to our friends and family. You can use it as your primary search engine or add it to your toolbar so you will not forget to use it. We are using it on our computers at the office and it works just like the Google or Yahoo search engines.
Washington Report from Florence
On Thursday and Friday, March 6th and 7th, Dr Gambetti and I visited Capitol Hill. Our focus was on human surveillance and the even more critical role it has now that we know “downer cows” were proven to have entered the food supply. On Friday afternoon we met with Ed Schafer, USDA Secretary, and some of his Under Secretaries. I’ve attached my report. My sense is that these meetings, at this time, held more potential for change because of the spotlight placed on the meat packers. We were invited to return to Washington for a meeting with the Labor HHS subcommittee.
Click here for the newsletter archive.
