CJD FOUNDATION NATIONAL HELPLINE - 800.659.1991
Professional Resources
National Prion Disease Pathology Surveillance Center
Dr. Pierluigi Gambetti,
Director
Institute of Pathology Case Western Reserve University
2085 Adelbert Rd.
Cleveland, Ohio 44106
Phone: 216.368.0587
Online: www.cjdsurveillance.com
Email: cjdsurv@po.cwru.edu
CJD Insight, Information & Support
Organized for Familial CJD
Deana Simpson, RN, Founder & Director
Phone: 586.786.6260
Online: www.cjdinsight.org
The CJD Foundation,
Mexico
Director, Dr Victor Sanchez
Sierra Mojado 800
Guadalajara, Jalisco 443430
Mexico
Online:
www.fundacioncjd.com
Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, Atlanta, Georgia
Phone: 1.800.311.3456 or 404.639.3396
Online: www.cdc.gov
CJD Voice (Chat Room)
Moderator, Dorothy Kraemer
Online: www.cjdvoice.org
Online discussion, support, and information site
National Organization for Rare Diseases (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: 203.746.6518 or 1.800.NORD (6673)
Fax: 203.746.6481
Online: www.rarediseases.org
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
31 Center Drive MSC 2540
Bethesda, MD 20892-2540
Phone: 301.496.5751 or 1.800.352.9424
Online: www.nih.gov
Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville, MD 20857
Phone: 301.443.1130
Online: www.fda.gov
Consumer Federation of America
1424 16th St., NW Suite 604
Washington, D.C. 20036
Phone: 202.387.6121
Online: www.consumerfed.org
United States Department of Agriculture Food Safety and Inspection Services (FSIS)
Phone: 202.720.9113
Infoline: 1.800.535.4555
Online: www.fsis.usda.gov
Information on food safety, meat and related products and meat inspection
United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS)
Phone: 609.259.5825
301.734.7799
Online: www.aphis.usda.gov
Information on animal health and BSE
University of San Francisco (UCSF) Memory and Aging Center
Dr Michael Geschwind
Assistant Professor of Neurology
350 Parnassus Ave., Suite 706
San Francisco, CA 94117
415-476-0670, Clinic
Email: cjdstudies@memory.ucsf.edu
Online: www.memory.ucsf.edu
Scottish TSE Network
Coordinator, Mischa Hautvast
Online: www.stn.ed.ac.uk/public
The National Creutzfeldt-Jakob Disease Surveillance Unit
Edinburgh, Scotland
Director: Richard Knight, M.D.
http://www.cjd.ed.ac.uk/
CJD Aware!
An online information site
Founder, Christy Brom
Online:
www.cjdaware.com
Email:
Info@cjdaware.com
CJD International Support AllianceCJD Support Network, U.K.
Gillian Turner , Coordinator
P.O.Box 346 Market Drayton
Shropshire TF9 4WN
Phone: 0163.067.3973
Email: cjdnet@alzheimers.org.uk
Online: www.cjdsupport.net
Online discussion, support, and information site
CJD Support Group Network, Australia
National Coordinator: Suzanne Solvyns
13
Araluen Place
GLENHAVEN NSW 2156
AUSTRALIA
Phone: NATIONAL TOLL FREE HELPLINE 1800 052 466
From outside Australia contact number: +61 2
98998905
email: contactus@cjdsupport.org.au
Fax: 02 98998905 or 1800 052 466
www.cjdsupport.org.au
CJD Support Network, Japan
Chairman: Dr
Muneto Ueda
Online:
www.cjd-net.jp
MCJ-HCC, France
President: JB Mathieu
BP 46
22650 Ploubalay
Paris, France
Phone: +33 0820 825303
Online:
www.mcj-hcc.fr
CJD Foundation, Israel
President: Alice
Anane
Email:
info@cjdisrael.org.il
Italian CJD Foundation
A.I.En.P.
President: Roberto Borgis
Via Paolo Di Dono,
131 -00142 –Roma
Phone: +39 (348) 8811514
Fax: +39 (011) 65.021.91 +39 (06)
60.200.649
Online:
www.aienp.it
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