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2008 Family Conference by Marisa
October 11, 2007 02:51 PM
Sixth Annual CJD Foundation Family Conference
The Creutzfeldt-Jakob Disease Foundation cordially invites you to attend the Sixth Annual CJD Foundation Family Conference: CJD 2008, July 11-13 at the Washington Court Hotel, Washington, D.C. This year for the first time we are
partnering with the National Prion Disease Pathology Surveillance Center and PrioNet Canada in an effort to expand the focus in many new directions. We feel that you, the families, will be the beneficiary of this expansion.
The highlights of the conference include:
˜ The opportunity to meet other families who have struggled or are still struggling with a CJD diagnosis
˜ The opportunity to hear about the latest prion disease research directly from the researchers
˜ The opportunity to participate in Capitol Hill advocacy visits
˜ The opportunity to hear about support organizations around the world
We want to encourage you to stay and participate in Capitol Hill advocacy visits Monday, July 14th. The Foundation sets up the appointments for you, provides training by a congressional staff person and equips you with materials to
share. This is an exciting opportunity to meet with your congressional representatives to discuss CJD and the issues most important to all of us. You will gain a better understanding of how our government works and the true sense that
together we make a difference. Judging from past evaluations, those who participate enjoy this unique opportunity.
We have enclosed a tri-fold which includes a registration form and list of speakers. The registration fee includes all conference sessions, a casual welcome reception Friday evening, continental breakfast and lunch on Saturday and
Sunday and the banquet Saturday evening. Please mail or fax your registration and payment as soon as possible, we are expecting this year’s attendance to be the largest due to our new partnership.
This year we have added the opportunity for an individual or group to sponsor a meal or coffee break, see the tri-fold for further information.
Please note, you must make your hotel reservations separately. Reservations are on a first come first served basis for the special conference rate. Be sure to inform the Washington Court Hotel that you are with the CJD Foundation. If
you choose a different hotel you will still need to register for the Conference with us.
We look forward to seeing you at this very special event and feel confident you will find the conference both valuable and healing.
Sincerely,
Florence Kranitz, President
Marisa Boarman, Associate Director
2008 Conference Registration Form
June 2008 Newsletter by marisa
December 21, 2007 02:06 PM
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