Welcome to the Creutzfeldt-Jakob Disease Foundation Website. This site contains information compiled with the needs of CJD patients and their families in mind. The CJD Foundation consists of members who want to support you through this experience. Support is a key ingredient in coping with CJD. Support from those who have had similar experiences can be more helpful than any written information. The primary goal of the CJD Foundation is to be part of your support system.

The CJD Foundation is also concerned about the complexity of issues surrounding this brain disease. Our philosophy is to be proactive by establishing collaborations and linkages, communicating with family members, researchers, physicians and political representatives and informing the broader community about CJD.
Our HelpLine is available. Calls are answered during work hours Monday-Friday 9:00 am-5:00 pm Eastern Time. Calls concerning patient issues that are received after business hours are returned in the evenings and on weekends.

Please call us at 1-800-659-1991 and ask for Florence or Marisa.

Unable to select database