CJD FOUNDATION NATIONAL HELPLINE - 800.659.1991
Professional Meetings
National Prion Disease Pathology Surveillance Center
Dr. Pierluigi Gambetti,
Director, Institute of Pathology Case Western Reserve University
2085 Adelbert Rd.
Cleveland, Ohio 44106
Phone: 216.368.0587
Online: www.cjdsurveillance.com
Email: cjdsurv@po.cwru.edu
CJD Insight, Information & Support
Organized for Familial CJD
Deana Simpson, RN, Founder & Director
Phone: 586.786.6260
Online: www.cjdinsight.org
Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, Atlanta, Georgia
Phone: 1.800.311.3456 or 404.639.3396
Online: www.cdc.gov
CJD Voice (Chat Room)
Moderator, Dorothy Kraemer
Online: www.cjdvoice.org
Online discussion, support, and information site
National Organization for Rare Diseases (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: 203.746.6518 or 1.800.NORD (6673)
Fax: 203.746.6481
Online: www.rarediseases.org
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
31 Center Drive MSC 2540
Bethesda, MD 20892-2540
Phone: 301.496.5751 or 1.800.352.9424
Online: www.nih.gov
Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville, MD 20857
Phone: 301.443.1130
Online: www.fda.gov
United States Department of Agriculture Food Safety and Inspection Services (FSIS)
Phone: 202.720.9113
Infoline: 1.800.535.4555
Online: www.fsis.usda.gov
Information on food safety, meat and related products and meat inspection
United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS)
Phone: 609.259.5825
301.734.7799
Online: www.aphis.usda.gov
Information on animal health and BSE
CJD Support Network, U.K.
CJD Support Network
P.O.Box 346 Market Drayton
Shropshire TF9 4WN
Phone: 0163.067.3973
Email: cjdnet@alzheimers.org.uk
Online: www.cjdsupport.net
Online discussion, support, and information site
Consumer Federation of America
1424 16th St., NW Suite 604
Washington, D.C. 20036
Phone: 202.387.6121
Online: www.consumerfed.org
University of San Francisco (UCSF) Memory and Aging Center
Dr Michael Geschwind
Assistant Professor of Neurology
350 Parnassus Ave., Suite 706
San Francisco, CA 94117
415-476-0670, Clinic
Email: cjdstudies@memory.ucsf.edu
Online: www.memory.ucsf.edu
Scottish TSE Network
Coordinator, Mischa Hautvast
Online: www.stn.ed.ac.uk/public
The National Creutzfeldt-Jakob Disease Surveillance Unit
Edinburgh, Scotland
Director: Richard Knight, M.D.
http://www.cjd.ed.ac.uk/
The CJD Alliance, U.K.
Online: www.cjdalliance.org.uk/
Contacts: Graham Steel
Don Simms
Professional Meetings
National Prion Disease Pathology Surveillance Center
Dr. Pierluigi Gambetti,
Director, Institute of Pathology Case Western Reserve University
2085 Adelbert Rd.
Cleveland, Ohio 44106
Phone: 216.368.0587
Online: www.cjdsurveillance.com
Email: cjdsurv@po.cwru.edu
CJD Insight, Information & Support
Organized for Familial CJD
Deana Simpson, RN, Founder & Director
Phone: 586.786.6260
Online: www.cjdinsight.org
Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, Atlanta, Georgia
Phone: 1.800.311.3456 or 404.639.3396
Online: www.cdc.gov
CJD Voice (Chat Room)
Moderator, Dorothy Kraemer
Online: www.cjdvoice.org
Online discussion, support, and information site
National Organization for Rare Diseases (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: 203.746.6518 or 1.800.NORD (6673)
Fax: 203.746.6481
Online: www.rarediseases.org
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
31 Center Drive MSC 2540
Bethesda, MD 20892-2540
Phone: 301.496.5751 or 1.800.352.9424
Online: www.nih.gov
Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville, MD 20857
Phone: 301.443.1130
Online: www.fda.gov
United States Department of Agriculture Food Safety and Inspection Services (FSIS)
Phone: 202.720.9113
Infoline: 1.800.535.4555
Online: www.fsis.usda.gov
Information on food safety, meat and related products and meat inspection
United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS)
Phone: 609.259.5825
301.734.7799
Online: www.aphis.usda.gov
Information on animal health and BSE
CJD Support Network, U.K.
CJD Support Network
P.O.Box 346 Market Drayton
Shropshire TF9 4WN
Phone: 0163.067.3973
Email: cjdnet@alzheimers.org.uk
Online: www.cjdsupport.net
Online discussion, support, and information site
Consumer Federation of America
1424 16th St., NW Suite 604
Washington, D.C. 20036
Phone: 202.387.6121
Online: www.consumerfed.org
University of San Francisco (UCSF) Memory and Aging Center
Dr Michael Geschwind
Assistant Professor of Neurology
350 Parnassus Ave., Suite 706
San Francisco, CA 94117
415-476-0670, Clinic
Email: cjdstudies@memory.ucsf.edu
Online: www.memory.ucsf.edu
Scottish TSE Network
Coordinator, Mischa Hautvast
Online: www.stn.ed.ac.uk/public
The National Creutzfeldt-Jakob Disease Surveillance Unit
Edinburgh, Scotland
Director: Richard Knight, M.D.
http://www.cjd.ed.ac.uk/
The CJD Alliance, U.K.
Online: www.cjdalliance.org.uk/
Contacts: Graham Steel
Don Simms
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